Brown University

The Fetal Treatment Program
HASBRO CHILDREN'S HOSPITAL - WOMEN & INFANTS' HOSPITAL OF RHODE ISLAND

The Warren Alpert Medical School of Brown University

Congenital Diaphragmatic Hernia

WHAT IS DIAPHRAGMATIC HERNIA (cdh)?

IMAGES

SUPPORT GROUPS

GLOSSARY

Below are links to other sites.They range from Support groups to Professional societies, Fetal treatment centers and General information sites.

SUPPORT GROUPS

Cherubs: The association of congenital diaphragmatic hernia research, advocacy and support

Breath of Hope, Inc. A nonprofit organization that offers support to parents of children with congenital diaphragmatic hernia, promotes awareness of the condition and encourages research.

TTTS Race for Hope: The TTTS Race for Hope was organized to save babies lives and to give hope to families by spreading awareness of Twin to Twin Transfusion Syndrome (TTTS) and by funding medical research. It is soon to become a more general support organization for all fetal conditions, including congenital diaphragmatic hernia.

 

PROFESSIONAL SOCIETIES

Society for Maternal-Fetal Medicine

Surgical Section of the American Academy of Pediatrics

American Academy of Pediatrics

American Pediatric Surgical Association

 

FETAL TREATMENT CENTERS

Several centers in the U.S. and the world now offer invasive fetal treatment for a variety of conditions. The most commonly performed type of featl surgery today is laser ablation of placental vessel for severe Twin-to-twin Transfusion Syndrome. For a list of centers that offer this type of interventions, click here

 

GENERAL INFORMATION

Perinatology.com Perinatology.com is an informational web site maintained by Focus Information Technology, as an educational resource for perinatologists, referring physicians, and genetic counselors. Information on the site has been written by perinatologists and genetic counselors of The San Gabriel Valley Perinatal Medical Group.

 

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