KidsHealth: The American Medical Association children's home page Aaron's Tracheostomy Page (www.tracheostomy.com): A very informative and complete resource site for infants and children with tracheostomies - with numerous links to other sites. The Pull-Thru Network: A chapter of the United Ostomy Association, a support group for children who have had, or will undergo a pull-through operation to correct a congenital malformation of the lower intestine Pseudo-Obstruction and Hirschsprung's Disease Society (APHS): A support group for children with motility disorders of the intestinal tract, including Hirschsprung's disease (aganglionosis), idiopathic pseudo-obstruction, and gastro-esophageal reflux. Their web site is temporarily unavailable, but information on Hirschsrpung's disease from APHS is available on this page. The Guardian Society: The Hirschsprungs's & Motility Support Network, a society formed by patients and parents of patients with motility disorders. This includes a lot of information and support for patients with Hirschsprunge are a group of ordinary people, mainly parents with kids but also adults, who have motility disorders. If you are an adult seeking help with motility problems then we have a specific group for you at www.gastrointestinal-motility-support.co.uk EA|TEF: Support group for patients with esophageal atresia and tracheo- esophageal fistula. The Rhode Island EA/TEF Support Group: A group of parents in Rhode Island have created their own, local support group. You can contact them by e-mail for further details, or call Neil Ead at our office. PAGER: Pediatric and Adolescent Gastro-Esophageal Reflux, a support organization for patients with reflux disease The GERD Word: Another site offering support to parents whose children suffer from gastro-esophageal reflux. The Fetal Treatment Program: Site of our own Fetal Treatment Program, a joint venture between Hasbro/Rhode Island Hospital, Women & Infants' Hospitla of Rhode Island and New England Medical Center in Boston. The Center currently focuses on the treatment of twin-to-twin transfusion syndrome. Twin Hope: A website about twin-to-twin transfusion syndrome and allied fetal conditions March of Dimes Foundation: Dedicated to infants with birth defects, pre- and postnatal care, and a great place for resources on neonatal problems Cherubs: The association of congenital diaphragmatic hernia research, advocacy and support Surgical Section of the American Academy of Pediatrics American Academy of Pediatrics CAPS: Canadian Association of Paediatric Surgeons American Pediatric Surgical Association American Pediatric Surgical Nurse Association
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