Pediatric Surgery @ Hasbro
HASBRO CHILDREN'S HOSPITAL

 

 Links

to support groups, pediatric and surgical associations, advocacy groups and other sites of interest
 The Rhode Island Support Group for children with Esophageal Atresia and Tracheo-Esophageal Fistula

The National SAFE KIDS Campaign: A national organization, with more than 260 state and local chapters, dedicated solely to the prevention of unintentional childhood injury

Aaron's Tracheostomy Page (www.tracheostomy.com): A very informative and complete resource site for infants and children with tracheostomies - with numerous links to other sites.

The Pull-Thru Network: A chapter of the United Ostomy Association, a support group for children who have had, or will undergo a pull-through operation to correct a congenital malformation of the lower intestine

Pseudo-Obstruction and Hirschsprung's Disease Society (APHS): A support group for children with motility disorders of the intestinal tract, including Hirschsprung's disease (aganglionosis), idiopathic pseudo-obstruction, and gastro-esophageal reflux. Their web site is temporarily unavailable, but information on Hirschsrpung's disease from APHS is available at American Pseudo-obstruction and Hirschsprung’s Disease Society, Inc. (APHS),
158 Pleasant Street
North Andover, MA 01845-2797
Phone: 508-685-4477
Fax: 508-685-4488
E-mail: aphs@mail.tiac.net

PAGER: Pediatric and Adolescent Gastro-Esophageal Reflux, a support organization for patients with reflux disease

Pediatric Surgery Home
Mission Statement
Faculty and Staff
Research and Programs
Patient Information
Prenatal Conditions
Office Map & directions
Forms and Instructions
Hasbro Children's
Links to other sites
University Surgical Associates HomepageUniversity Surgical Associates

The Guardian Society: The Hirschsprungs's & Motility Support Network, a society formed by patients and parents of patients with motility disorders. This includes a lot of information and support for patients with Hirschsprunge are a group of ordinary people, mainly parents with kids but also adults, who have motility disorders. If you are an adult seeking help with motility problems then we have a specific group for you at www.gastrointestinal-motility-support.co.uk

EA|TEF: Support group for patients with esophageal atresia and tracheo- esophageal fistula.

The Rhode Island EA/TEF Support Group: A group of parents in Rhode Island have created their own, local support group. You can contact them by e-mail for further details, or call Neil Ead at our office.

 

The GERD Word: Another site offering support to parents whose children suffer from gastro-esophageal reflux.

The Fetal Treatment Program: Site of our own Fetal Treatment Program, a joint venture between Hasbro/Rhode Island Hospital, Women & Infants' Hospitla of Rhode Island and New England Medical Center in Boston. The Center currently focuses on the treatment of twin-to-twin transfusion syndrome.

Twin Hope: A website about twin-to-twin transfusion syndrome and allied fetal conditions

March of Dimes Foundation: Dedicated to infants with birth defects, pre- and postnatal care, and a great place for resources on neonatal problems

Cherubs: The association of congenital diaphragmatic hernia research, advocacy and support

American College of Surgeons

Surgical Section of the American Academy of Pediatrics

American Academy of Pediatrics

CAPS: Canadian Association of Paediatric Surgeons

American Pediatric Surgical Association

American Pediatric Surgical Nurse Association

 

Click here to learn more about fetal medicine, fetal therapy and fetal surgery at Brown