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The Guardian Society: The Hirschsprungs's & Motility Support Network,
a society formed by patients and parents of patients with motility
disorders. This includes a lot of information and support for
patients with Hirschsprunge are a group of ordinary people, mainly
parents with kids but also adults, who have motility disorders.
If you are an adult seeking help with motility problems then
we have a specific group for you at www.gastrointestinal-motility-support.co.uk
EA|TEF: Support group
for patients with esophageal atresia and tracheo- esophageal
fistula.
The Rhode Island EA/TEF Support Group: A group of parents
in Rhode Island have created their own, local support group.
You can contact them by e-mail
for further details, or call Neil
Ead at our office.
The GERD Word: Another
site offering support to parents whose children suffer from gastro-esophageal
reflux.
The Fetal Treatment Program: Site of our own Fetal Treatment Program,
a joint venture between Hasbro/Rhode Island Hospital, Women &
Infants' Hospitla of Rhode Island and New England Medical Center
in Boston. The Center currently focuses on the treatment of twin-to-twin
transfusion syndrome.
Twin Hope:
A website about twin-to-twin
transfusion syndrome and allied fetal conditions
March
of Dimes Foundation:
Dedicated to infants with
birth defects, pre- and postnatal care, and a great place for
resources on neonatal problems
Cherubs: The association of congenital diaphragmatic
hernia research, advocacy and support
American
College of Surgeons
Surgical Section of the American Academy
of Pediatrics
American
Academy of Pediatrics
CAPS: Canadian
Association of Paediatric Surgeons
American
Pediatric Surgical Association
American
Pediatric Surgical Nurse Association
Click here to learn more about fetal medicine,
fetal therapy and fetal surgery at Brown
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